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Profile picture for Sue, Volunteer Mentor @sepdvm

@jeffvalvassori I agree with you on medical team providing more information. We learn to ask more questions as we go along, but if you made it clear that you wanted details of side effects of treatment, then they missed the mark with you. Some patients would prefer not to have this information so it can be hard for the medical team to know. I wish I had known more about late effects of radiation. Just so we can recognize and address the changes.
I sincerely hope that your new mass turns out to be scar tissue and not cancer. But there are new treatments coming along regularly so we must keep fighting. A newer immunotherapy has squelched my last metastasis and after 2 years on and 3 years off it, I have remained clear. And as for the nerve damage, be patient because nerve tissue is very slow to heal. I had right sided facial paralysis 14 years ago when I woke up from surgery but improvement continued for many years. Research Lion's Mane mushrooms for support in nerve healing. Keep us informed about your results.

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Replies to "@jeffvalvassori I agree with you on medical team providing more information. We learn to ask more..."

@sepdvm thank you. I’m going to look up lion’s mane mushrooms when I get home. I’ve only tried them once but definitely worth looking into