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My experience after craniotomy to remove a meningioma
Brain Tumor | Last Active: 2 hours ago | Replies (55)Comment receiving replies
First: a big thank you to everyone who shared about their experience. I'm scheduled in 25 days, and am absolutely terrified. My "thing" is 1x2.8x3.2 cm and located at the top of my head, left side, next to/near the superior saginal sinus - which is the main vein that drains blood from your head. I am so scared this vein might get nicked, which could trigger a stroke. I'm not having any symptoms other than occasional headache in the morning (but that could just be wildfire smoke (I live in the west). Anyone else have a meningioma in this location? How did you do? thank you all.....
Replies to "First: a big thank you to everyone who shared about their experience. I'm scheduled in 25..."
@ladytri
Hello, The neurosurgeon will be aware of the proximity to the sagittal sinus and will be extra careful. I had a meningioma that contacted the superior sagittal sinus, fortunately not growing into it. The neurosurgeon’s report specifically stated that he was not as aggressive as he could have been when removing the bits of tumor stuck to the sinus. Good luck with the surgery, you’ll do fine.
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@ladytri I had my tumor in the same general area. However, mine was over the sinus and went over the upper and lower lobe. The mri said the sinus was occluded. When he got into my surgery and cut through the sinus it was not occluded at all. He said ,"You definitely don't have a lack of blood flow in there". They ended up clipping it until they got everything taken care of and removed. It was just a little busy for a bit. I was fine in the end. I'm 6 weeks post surgery and still heading the bone but everything else seems ok. A little tender on the surgery site still.
The one thing I wish I would have done was prepare by getting my hair really trimmed short before because they shaved the entire back of my head. I ended up not being able to salvage my shoulder length bob, but did a pivot and had a short pixie. If I had made it short before they wouldn't have shaved so much and I wouldn't have to grow out the crown area too. Food for thought.