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@boomermeg Hey JAbrown i feel your pain. I'm greg in California. Got diagnosed with PMR in February. Been on Predinose since starting at 15 mg and now at 5 mg. It's a battle. I feel prednisone alleviates the pain but is not the answer. Prednisone is not good for you in the long run either. I feel all these Auto Immune diseases are caused by a leaky Gut. I've gone Gluten free, stopped drinking Alcohol, Taking A good Pro Biotic helps the gut. Try to do less sugar and avoid processed foods. The Rheumatogist I have never suggests these important things. You have to be an advocate for yourself. Your body needs rest but also find time to do some fitness. I find hitting the swimming pool helps me stretch out. I also see a Accupuncturist which helps take out the inflammation and Arthritis. I also find that walking and running stairs help me especially when im warmed up. Getting in a crouch like a catcher in baseball helps.
My PMR came on when i injured my shoulder doing bench press at the gym. I then found out i had tears in my rotator cuff also. I'm debating whether to suck it up and not do surgery. I'm 70 in September. Keep in touch, Greg

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Replies to "@boomermeg Hey JAbrown i feel your pain. I'm greg in California. Got diagnosed with PMR in..."

@geese1
It's very true re our "gut microbiome " health and just how much difference it makes in our health if we "feed" it properly and help it thrive.
You sound like you're in fantastic shape in terms of your physical fitness and abilities to do all kinds of great activities. I'm not where near that. But, I'm doing what I can as I get improvement. It's been so debilitating for so many months in addition to the stiffness caused by sleeping upright on the couch for months has made for a lot I have to get "worked out." Food is huge. What we eat should be thought of as "let thy food be thy medicine, and thy medicine thy food!"
I stopped eating all sugary treats etc because of the inflammation it caused me a long time ago, plus knowing how bad it is for us. I try to eat organic as much as possible and eat well. I'm dealing with so many other health issues at the same time it's compounded. I have bad knees (osteoarthritis and meniscus tear/surgery) and had Baker's cysts behind both knees that ruptured in May.
As well as all my spine/chronic pain neck, sleep apnea and multiple other things.
So, this added on top of all that. But if there's a will, we can try to find a way. One day at a time with God's help and the support of eachother. Thanks for your encouragement. May you feel better too.