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Reclast infusion side effects?

Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (290)

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Profile picture for dannyandebbie @dannyandebbie

@gently 69 year old male! I was given a steroid pack x 2 with no positive results! It’s been 26 months since I received my first and last infusion; never, ever again! It started with nausea, should pain and left foot! Nausea, shoulder pain, exhaustion, fatigue, vision blurry, lower back pain and latest is this constant shocking sensation whenever I cough in my groin and upper legs. Rheumatologist, neurologist and / or Endocrinologist all have no answer for the symptoms!

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Replies to "@gently 69 year old male! I was given a steroid pack x 2 with no positive..."

danny, your experience makes it clear that the rheumatologist, endocrinologist and neurologist should be answering "Reclast."
I'm grateful that you reveal your experience. Otherwise no one will know the risk they are taking with this drug.
Ideally a person reacting to Reclast would have the steroid IV soon after the infusion (as some have been hospitalized), or better, prophylactically before the infusion. While I suspect that you may have received the steroid too late, I don't know if early steroid can resolve all the negative reaction to Reclast. That you are having new symptoms is a sign that maybe it doesn't. It doesn't even seem that any of your symptoms are lessening and this new symptom is appalling.
I do know that the reaction is seldom recognized as related to the infusion.
I've wondered, do you think that you were more at risk because of latent autoimmune systems? or is any suspected autoimmune reaction directly caused by the drug.
Thanks for continuing to post.

@dannyandebbie I'm so sorry to hear that you had all of these side effects even though you were prescribed a steroid pack. This is exactly what I am afraid of! I know everyone is different but I just do not want to take a chance. I hope you start feeling better.

@dannyandebbie So very sorry! Reclast ruined my life too. When can we get a class action? This is poison!