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@santosha
I went into mayo today to the have blood drawn, and a walking e e g attached for twenty four hours. I made it a point of having my neurologist check my sodium levels at the same time and the results came back dangerously low. I called him to find out what to do and he advised electrolyte water, high in sodium, and to drink less plain water. We live in the desert and we are accustomed to drinking a great deal of water. Before the appointment, I had looked into the drugs, and he also put me on clonazepam in conjunction with the trilipdal for ten days to try to even me out. I did tell him that any drug that was capable of doing that to me. I didn't think was good for me to take. I saw him for a moment today when he came in to check on me during the EEG attachment. His nurse had not been clear to him about the severity of the situation. He and I have a very close and open relationship. I am hoping my memory comes back and that it's not gone for good. But only time will tell. I went to my naturalist this evening to get supplements. That would better support my sodium and that just needs a few days to correct itself. I appreciate your concern and would definitely tell anyone else thanking about trilipol or oxcarbazepane to think twice and to always research a drug, and it's possible side effects before ever putting it in their mouth, they also need to check it's interaction with their existing drugs. I will cover we always do. Thank you.

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Replies to "@santosha I went into mayo today to the have blood drawn, and a walking e e..."

Hi @absentsenior
Thank you for sharing all of this!
I'm relieved your sodium was checked and caught, even though the result was so low. And I'm glad you and your neurologist have such a close, open relationship — that really does make a great difference!
Trileptal (oxcarbazepine) works as a sodium channel blocker, and I already tend to run on the lower side with blood pressure — so it lowered it further. It was actually through that experience that I learned low sodium is one of my own seizure triggers, which was an important thing for me to understand about my own condition. My medication was eventually changed to one that doesn't work that way.
It sounds like you and your doctor are already actively working on the sodium and Trileptal connection, which is reassuring. Out of curiosity, how has your blood pressure been through all this?
I see you're already titrating down the dose. Out of curiosity, has your doctor mentioned trying an anti-seizure medication from a different therapeutic class, one that doesn't work as a sodium channel blocker?
I hope all the changes help support you as you recover. Sending you much strength while you wait for your memory to return.🙌
Chris