← Return to Responsive neurostimulation (RNS) as an epilepsy treatment?
DiscussionResponsive neurostimulation (RNS) as an epilepsy treatment?
Epilepsy & Seizures | Last Active: 1 day ago | Replies (45)Comment receiving replies
Replies to "@santosha I went into mayo today to the have blood drawn, and a walking e e..."
Connect

Hi @absentsenior
Thank you for sharing all of this!
I'm relieved your sodium was checked and caught, even though the result was so low. And I'm glad you and your neurologist have such a close, open relationship — that really does make a great difference!
Trileptal (oxcarbazepine) works as a sodium channel blocker, and I already tend to run on the lower side with blood pressure — so it lowered it further. It was actually through that experience that I learned low sodium is one of my own seizure triggers, which was an important thing for me to understand about my own condition. My medication was eventually changed to one that doesn't work that way.
It sounds like you and your doctor are already actively working on the sodium and Trileptal connection, which is reassuring. Out of curiosity, how has your blood pressure been through all this?
I see you're already titrating down the dose. Out of curiosity, has your doctor mentioned trying an anti-seizure medication from a different therapeutic class, one that doesn't work as a sodium channel blocker?
I hope all the changes help support you as you recover. Sending you much strength while you wait for your memory to return.🙌
Chris
View Translation