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Tymlos - can you stop it suddenly?
Osteoporosis & Bone Health | Last Active: 2 hours ago | Replies (34)Comment receiving replies
The person who prescribed the Tymlos should also be closely monitoring your blood and urine calcium. Low blood calcium can cause muscle cramping. High blood calcium can lead to kidney stones. As someone who prescribed the Tymlos in the first place, it is my belief that that person should be managing your calcium issues. I have just experienced someone who wants to dump that kind of follow-up on a primary physician but my stance is, if you give me something that you know is going to affect my calcium levels (both urine and blood) you better be ready to manage it and not dump it on someone else. That would be your endocrinologist.
Replies to "The person who prescribed the Tymlos should also be closely monitoring your blood and urine calcium...."
@dorob
How often were you getting blood tests for monitoring calcium etc?
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@dorob Agreed. The challenge for me was to get either my endocrinologist or my GP to hear me. Seriously, I was mentioning leg cramps from the very first and by then end, I would rate them as an 8 on a 0-10 pain scale. But I didn't realize that until I was off the medication and so I never pushed it. I should have.
Docs are paying better attention now because once my serum calcium returned to normal, along with my mental capacities, which were also affected, I contacted both the docs to state the issue of having not been heard by them even in the previous week, when I was really going downhill. It would have been good for me to have an advocate because when my C was high I was not effectively advocating for myself.