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@szelisk No, I’m from Chicago but now live in Texas. Most collagenous colitis is either Budesonide resistant from the start or becomes so. My last GI, told me If you have MC, it does not go away. I try to control mine through diet, sometimes it works. Night time is always the worst. Please be very careful because having it for a lengthy amount of time can cause cardiovascular disease, so get checked for that!

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Replies to "@szelisk No, I’m from Chicago but now live in Texas. Most collagenous colitis is either Budesonide..."

@ndough, I see a cardiologist because of my family history. Luckily, I don't seem to have the cardio issues my siblings or family do. My biggest problem is refractory Celiac, budesonide-resistant colitis, chronic gastritis, and pancreatic enzyme insufficiency. We are hoping this Entyvio will help. Budesonide is no longer an option for me, and neither is doing nothing. My diarrhea was so bad that my potassium levels are low, even with taking prescription potassium and magnesium and drinking 32 oz of pure coconut water a day (they went so low that I needed an IV).