Connect
← Return to Post Prostatectomy 6 years. PSA <.01 until now. Anyone else?
Discussion
Post Prostatectomy 6 years. PSA <.01 until now. Anyone else?
Prostate Cancer | Last Active: 7 hours ago | Replies (110)Comment receiving replies
@tom86 A DRE looks for swelling or abnormalities in the prostate gland; if there’s no gland to palpate, why do it?
@melvinw’s situation seems to be an outlier, but it prompted further treatment.
My first RO at Sloan did a DRE ( 5 yrs after surgery) and you would think he was searching for the Holy Grail - good God!!
When I told the second, younger RO about it he laughed and said they no longer did it - they now used PSMA PET.
I suspect Melvin’s nodule would have shown up on the PET but maybe not since some PCa types don’t produce a lot of PSA
Phil
Replies to "@tom86 A DRE looks for swelling or abnormalities in the prostate gland; if there’s no gland..."
@heavyphil
After reading so many of these comments, I am beginning to think it is not just the prostate they are feeling with a DRE. Surrounging tissue, bowel, bladder neck, any other systems that may be palpable within the rectal area when the 'reach deep'. The stories that are puzzling are the ones where no PSA is present yet a nodule can be detected. Something the medical community says doesn't happen?
Connect
@heavyphil Ha, everything about my situation seems to be an outlier.
My nodule indeed showed up on a PET scan, and with an SUVmax of 13.3, even though my PSA was 0.11
But also, when my PSA hit 0.11 after ten years of being undetectable, my new urologist didn’t even want to restest. He fobbed it off as “lab variance” and said come back in a year. Of course, he didn’t have all my medical records at the time (or didn’t bother looking to see that I had a nodule). I talked to my PCP the next day and he immediately ordered a PSA retest, which came back at 0.12 (so much for "lab variance"). Then I messaged the urologist, told him about the restest and sent my medical report from two years prior that showed a 1-cm nodule detected during a DRE. At that point, it became a 5-alarm fire. He immediately ordered a PET scan and referred me to a colleage in his group that specialized in advance prostate cancer. AND insurance approved the PET scan.
So, let’s say the nodule had not been detected by a DRE when my PSA hit 0.11. Would the urologist have done a DRE then? Without DRE evidence of a nodule, would any doctor order a PET scan when PSA was only 0.11, and would insurance approve? Probably not, on all counts. But sometimes the hoof beats do turn out to be zebras.
After the PET scan, I got opinions from three oncologists about treatment. The second one (an MO) wanted to hit me with three different hormone drugs before starting radiation therapy. So, I went from a urologist responding to my 0.11 PSA with “meh, see you in a year” to an oncologist wanting to start WWIII in my body, all within a fewe weeks.
And to top off the whole outlier nature of my situation, I switched to usPSA testing from Labcorp just before starting IMRT (no ADT). It yielded 0. 097 (i.e, “undectable" in the good ol days). But at that point both PET and MRI scans had confirmed the local recurrence.
This whole relapse episode has re-affirmed a couple things: You gotta be your own advocate--sometimes you need to push forward, and sometimes you need to push back. And sometimes a finger up the butt saves the day.