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@donnagail I’ve had it for 35+ years. I won’t take Budesonide because it is, basically, a steroid. Not good for women. I stockpile Depends for when it does flare up, and even though I usually won’t make it to a bathroom on time (even at home), they often save my clothes! It is a major change of life. Whenever I go out, I have to pretty much carry a “diaper bag” with me for all of the supplies I need.

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Replies to "@donnagail I’ve had it for 35+ years. I won’t take Budesonide because it is, basically, a..."

@ndough Same here. I had to rmtravel around Europe and Morocco with a daypack with change of clothes, wet wipes, underwear,etc. I have a toiletry bag in all our vehicles as well as emergency waste 'WAG' bags. It's embarrassing, humiliating and traumatizing when it happens in public, but I refuse to give up my life. I haven't done group outings but I try to stay connected with friends by hosting at my house or anywhere I can be near a bathroom.