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Possible causes of MAC/MAI Re-Infections

MAC & Bronchiectasis | Last Active: Aug 27, 2018 | Replies (59)

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@barbie46

I had a severe asthma attack about two months after I stop taking the Big 3 antibiotics for MAC. I thought I was going to die. Later I thought I still had the MAC but did a culture and was negative but then after pulmonary testing I was told I had bronchiectasis.

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Replies to "I had a severe asthma attack about two months after I stop taking the Big 3..."

@barbie46, Barbie, how long ago did you go off of the BIG 3?

I was on the Big 3 for a year from Feb. 2013 to Feb. 2014 - no signs of MAC since then but now have bronchiectasis or maybe had that before - not sure. My lung capacity is in the mid 40's.

2 years MAC free. That's great.

Did you have cavitary or nodular?

Stay well!!!
Kay S

@barbie46 Wow, then you have gone a long stint without MAC infection, that's great! And it is encouraging! See this @jenblalock and @cld120? There is hope that this mess clears up. My lung function is at 40% too. Are you having issues with being short of breath? I am lately. I do not know if it is due to this current infection or just me going downhill. I have noticed that I have gotten worse. I haven't been to the gym in two weeks, mainly because of a recent fall. I swear, going to the gym was keeping me going.

Windwalker - yes, I get short of breath. I am on 2 liters of oxygen at night and when I exercise. I do all my exercising at home with weights and bands - all except aerobic. I know the Mac will always be in my system. Using the 7% saline solution in my nebulizer helps me the most to get the mucous up and out so hopefully my bronchiectasis is slowed down and not damaging my lungs as quickly. I was diagnosed with asthma almost 25 years ago and had a lot of flare-ups with that where I was on prednisone a lot which weakens your immune system which might have had something to do with getting the MAC in the first place.

@barbie46 Same here Barbie. 2 liters of oxygen at night and have to use it with aerobic exercise at the gym. Sounds like we are in the same boat.

Yes, very similar.

Terri @windwalker, sending you support and hugs during this challenging time for you. It makes sense that the current lung infection would make shortness of breath more likely. Keep a positive attitude, as best you can. I agree about the gym. I go to an all women's one that I love. Be better soon!

@cld120 Thank you, Carolyn. It's been six days since I last checked in here; I am actually feeling a lot better. The shortness of breath is improving also. Yay!!