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Questions about sarcomatoid urothelial carcinoma

Bladder Cancer | Last Active: Aug 30 6:36pm | Replies (12)

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@jaxfl Is this another group and how do I find them. Thanks so very much for the suggestion! 🥰

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Replies to "@jaxfl Is this another group and how do I find them. Thanks so very much for..."

@debbieanddale The Inspire website inspire.com is full of information and divided into groups so you search for bladder cancer on the inspire site. I am assuming that Dale is not using a computer for internet access? So this site would help you help him.
I think he needs to request to see social services at the hospital for his next infusion, if not sooner. They will have the local contacts to help to arrange assistance for him. He needs home health care as well as daily food prep. Is he financially stable to pay for some assistance? We had good luck with relatives using a Meals on Wheels group to provide weekly food drop off. There are groups such as Visiting Angels where nonmedical personnel visit regularly to assist in food prep, laundry, and cleaning, as well as companionship. This can get expensive over a long term.
Keytruda does tend to knock your appetite down and make food taste different, as well as making you very tired. You can order him a case of high protein shakes like Boost or Ensure from Amazon and have it delivered to his house.
After radical cystectomy the repair options include rebuilding a new bladder from the patient's ileum which connect to urethra and ureters which is a neobladder. Others opt for a urostomy which obviously drains urine into a bag. He should have someone with him when discussing his options with his urologists. Does he have a nurse navigator to rely on through the hospital/infusion center? He is lucky to have you with your medical knowledge and concern.