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New SIBO diagnosis

MAC & Bronchiectasis | Last Active: 19 hours ago | Replies (18)

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Hi-

I have tested positive for SIBO by breath test twice. My symptoms have been non specific most of the time - low grade constipation dominant IBS. Occasional I have a bout of more intense symptoms. I was positive for both gases on both tests. I was offered the antibiotic but declined because cost and likely recurrence.

I have mentioned in other posts that I have malrotation of the intestines leading to having my small intestine being on the right side of the abdomen and my large intestine being on the left side. Malrotations can also create adhesions and affect motility so I think my issue may be mostly structural.

I have cycled on and off a low FODMAP diet. I have a friend with SIBO and a very serious case of IBD who follows the diet religiously. I find a avoiding onions and garlic for a while really helps,

I am not sure if you have heard about a device called the Foodmarble. It is an at home device that measures methane and hydrogen in a user’s breath. The app also tracks diet. For me personally I have found the device to be accurate. I tracked the accuracy by using the device while taking my second clinical SIBO tests. The results were nearly identical. Others have said they got different results. As always everyone has to do their own research and evaluation. I do wonder if breath tests both the clinical ones and the Foodmarble ones might be affected by lung disease. The AI response says it’s possible that lung bacteria could affect the results. I had my tests before I knew about the Bronchiectasis. It might be something you want to discuss with your doctor.

Good Luck.

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Replies to "Hi- I have tested positive for SIBO by breath test twice. My symptoms have been non..."

@annalaine , How interesting. No, I have not heard of Foodmarble, but I will check it out. My results were actually marginal, but they said that they qualified. I have also never heard of the Martin that you mentioned. I do know that the problems with SIBO can be structural in origin. Low stomach acid is also implicated.

Yes, the medicine is expensive. I was fortunate that my insurances left me with only a $60 copay, but that is also not cheap. I know that treatment for methane dominant is slightly different, as is treatment for both types.

Another issue with SIBO is motility. The motor complex (can’t remember the name) does not function as it should, and so the muscular contractions and messaging are off. I read that having meals that are well spaced out three times daily helps to reset that. Well, with MAC and bronchiectasis, in order to keep weight on, we are advised to eat multiple small meals a day, which I had been doing and never used to do.

It is a multi factorial issue, including stress, as stress raises cortisol levels, increasing tension, and the cortisol also affects stomach acid.

Gut brain and gut lung connections are very real. I believe that traditional Chinese medicine really has it right.