Hello @mikev. Sorry to hear of your repeated bladder infections. My husband's medical team explained at the start that it takes a while for the bacterial population of the small intestine used for the neobladder to adapt to its new role as a bladder. There may always be bacteria found in a urine sample that are present now because it was a piece of gut used to make the bladder. Mayo urologists always want to do their own urinalysis because local labs may not realize the changes in bacterial population. Presence of blood microscopically can also last for a long time as well as an increased production of mucous that never seems to stop. White blood cells are present in the mucous, so many features of a UTI can be present in a daily sample. If this is your medical team evaluating a U/A then they know the difference between a UTI and the new normal for a neobladder, which a local lab may not. My husband was treated with antibiotics 2-3 times during the first 2 years postop, but he had many complications with ureter blockage, nephrostomy tubes placed, stones identified on scans, and incisional hernias.
I wonder if a good probiotic taken orally would help manage your bacterial population? Maybe a question for your medical team.