Yes, I have questions about continuing ADT as well. I've posted here before:
68 Y.O., started with stage lll, dd the external radiation coupled with Casodex and Eligard. I knew immediately that the ADT compromised my CV system...narrowly avoided heart failure and subsequently moved to Firmagon. Even with Firmagon, it affected my CV system, narrowly avoiding a stroke....
There have been times I've suspended the Firmagon after Chemotherapy (Taxotere) because I knew the combination was overloading my body. I've gone 3 months without ADT at times and BP and blood sugar returned to normal.
I continued the Firmagon after the PSMA-PET scan showed metastasis yet again (L4 and the prostate gland itself) and subsequently added Pluvicto infusions. Here I am again: the Pluvicto seems to be effective but the combination with Firmagon once again caused me to suspend the Firmagon. It's been 2 months off Firmagon and 3 infusions of Pluvicto. I'm due for a 4th Pluvicto soon and have to decide whether to continue Firmagon or any ADT...I will s/w my oncologist re: Estradiol.
Bottom line, it seems that everyone reacts differently to these (continued) combinations and, eventually, must make their own decision based on the efficacy of the combinations coupled with the body's reaction...mine always seems to be CV issues...
Prayers are with all of us!!
@deccakid
Have you considered using Orgovyx Instead of Firmagon. It’s supposed to be better on the heart. Are you on a blood thinner so you don’t get a stroke? Sure can relieve the anxiety.