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@boomermeg where is your pain? I would absolutely go talk to your doctor about upping the dose even more. I started out with 60 mg, which knocked out the pain let me tell you. The PMR pain is mostly in between my shoulder blades. But when it reaches the buttocks, and I have trouble sleeping, eating or resting upright, then it’s a problem. I’ve been back and forth on what to take and what to do for fear of side effects. It seems to come on seasonally too. Right now being quite high in the discomfort zone. Mineral epsom salt baths really help. I hope you find relief! Tell your dr about your pain levels!
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@clendenin
clendenin I was diagnosed in February with 40mg of prednisone, have been up and down with it and now on 5 mg. I do not see a rheumatologist until October 12. My pain is shoulders, arms, hips, legs and when it is hurting so bad in evening I have taken marijuana which has helped me sleep. I live in a state where marijuana is legal and I have a medical marijuana card. Not sure if anyone in chat group has tried this for pain. I hope you find relief. I’m 78 years young
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@clendenin Thanks. I see my Rheum Dr in 3 weeks. So far it's the left shoulder/arm/fingers not responding as well as the rest of my body. Symptoms and pain are so much better, if not resolved in rest of body.
I've been on the upped 20mg dose almost 1 week, so will let her know the left still isn't responding enough. I hope to get pain fully under control, as it's been brutal especially prior to any Prednisone, then hope to start tapering too if Dr agrees to try to prevent bad side effects. But one thing is for certain, I do not want to live with this brutal incessant pain anymore. I realize tapering can cause flare ups so I'm praying I don't experience those but am realistic about the possibility. Thanks again.