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I was diagnosed with PMR in March and SMM in May. I have been doing a fast taper off prednisone because of the SMM and using 3mg LDN as a bridge to kevzara, which I started 3 weeks ago. I'm only on 4.5mg prednisone now. My sister had PMR a few years ago and because of her fear of prednisone she would only take ibuprofen. It did very little for her but she stubbornly refused to take anything else. It took over a year for her pain to go away.
Replies to "I was diagnosed with PMR in March and SMM in May. I have been doing a..."
@kjoed53 I find this interesting, because I have spent 7 months working with my primary care doc trying to figure out why I had this "inflammatory response" that ONLY ibuprofen would help, I managed to not take it every day, but had constant lab tests to be sure my liver and kidneys are ok. I worked with a nutritionist and my inflammation markers are down, but the pain persists. Finally I was diagnosed with PMR by a rheumatologist. I'm on 10 mg predinose but am rather horrified at the side effects. I have glaucoma which is managed, but I don't want it to increase. I also have osteopenia, so the bone loss is disturbing. I just wrote to a homeopath to get her info.... I was glad to hear that you sisters PMR pain DID go away!
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@kjoed53
Thank you so much for your reply! I’m like your sister- I’m afraid of all drugs. That gives me hope that I can do this without drugs. Please keep me informed how you and your sister are doing! Best wishes to both of you!