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Cortisol deficiency, but with weight gain

Autoimmune Diseases | Last Active: 15 hours ago | Replies (110)

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Profile picture for swalex @swalex

@becsbuddy Hello,
You are very kind and thoughtful. Your experience reflects what so many people go through.

I’m now in a position where I need to reduce my hydrocortisone, but unfortunately, I don’t have the medical support I need. My endocrinology appointment is still eight months away, and my PCP doesn’t seem to recognize that skin thinning can be related to hydrocortisone use.

So I wrote a summary for him. Whether he will actually read it, I don’t know. But I need to find a safe way to reduce the hydrocortisone, with regular cortisol testing and appropriate monitoring, which he would need to order. I’m hoping that with careful monitoring, I can reduce the hydrocortisone safely and give my paper-thin skin a chance to recover.

Thin, Fragile Skin, Bruising and Slow Healing: Hydrocortisone/Glucocorticoid Effects and the Possible Relevance of sPRP and BPCP: https://swaresearch.blogspot.com/2026/08/thin-fragile-skin-bruising-and-slow.html

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Replies to "@becsbuddy Hello, You are very kind and thoughtful. Your experience reflects what so many people go..."

@swalex Thank you for your compliment!
As for your PCP, I think you’ll need to hold on to him until the hydrocortisone taper is complete. Maybe approach him again with your study AND a schedule of how you will taper off. You would ask him to help by getting blood samples at routine intervals. You might also think of writing up the scenario with photos of your thinning skin. Like an educational study. He would just have to see all the benefits for him. You writing up a program ( you already wrote up 1/2 of it), keeping an educated monitor on things and then writing a post-study ___________________. (Can’t think of the word)