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Profile picture for songinmyheart54 @songinmyheart54

I am 78 and have a very complicated asthma history. Had it since birth plus eczema. Allergic to grasses, pollen etc. I dont know what I was treated with as a child but I seemed to be ok as a teenager and dont remember having attacks until I married at 19. My husband was in the Navy so the Navy doctors put me on theophylline which helped me immensely.
I was under control unless I got a cold, sinus infection,flu and then it always ended up in my chest.
As years went by I was in and out of ER's and was tried on more medicines that I can even remember. When they became available I was put on singular (montulucast), ventalin inhalers and a few others that the names left my memory.
I had been on advair but I guess insurance says I have to use Wixela which works for me. And then I was told about the injection every 8 weeks called FASENRA. It was a game changer. For 3 years I never got sick and then my 4th cancer in 11 years showed up. Melanoma metastasized stage 4 in my lungs. Of all places and inoperable.
Melanoma doesnt play well with others like chemo or FASENRA. Yes I had to stop fasenta when I went on immunotherapy called Keytruda. For 6 years now I have suffered beyond anything I could ever have imagined. Keytruda has me in remission but I have to be on it indefinitely so that means my suffering is going to be with me forever.
I cant move 10 feet until I cant breath. I have to sit alot which leaves me with no quality of life.
I use my nebulizer 10-12 times a day, coughing constantly. I cant take more than 5mg of prednisone because of Keytruda.
Keytruda has damaged my heart too and now we are checking my kidneys. If I could breath I wouldn't care about any other symptom.
I am still using my asthma medications. I might add that this breathing problem I have is a side effect and doesnt feel like my typical asthma. I periodically have a coughing attack that will bring on my asthma and there is a difference.
My suggestion is to stick with a good pulmonologist.
Sorry for the long post.

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Replies to "I am 78 and have a very complicated asthma history. Had it since birth plus eczema...."

@songinmyheart54 you

I have asthma since birth and have developed, over the last 14 years or so, bronchiectasis, NTM, and MAC. The last 3 do cause breathing issues, but you are correct: asthma and these 3 feel different. You might want to mention the difference to your Pulmonologist just to be sure. People later in life with lifelong asthma are prone to develop these other lung conditions.