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Did anyone undergo Car-T therapy for B cell lymphoma?

CAR-T Cell Therapy | Last Active: Nov 7, 2023 | Replies (76)
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@kevin_153

Hi, my name is Kevin. I have Follicular B­-cell non­Hodgkin's lymphoma. I am currently receiving TTI-622 by Trillium Therapeutics, an experimental drug clinical trial. They are trying to extend me into the Allogene Car T Cell trial on August 11, 2019. I am going through the Colorado Blood Cancer Institute in Denver. I have had several treatments since 2015, including R-CHOP and RICE chemotherapy and an autologous stem cell transplant (at CBCI). I relapsed from my stem cell transplant within 10 months. Everything seems so surreal to me. I am scared and feel somewhat lonely. It helps reading about other people's journey on this site. This is the first time I have accessed information in this manner. Kevin

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Replies to "Hi, my name is Kevin. I have Follicular B­-cell non­Hodgkin's lymphoma. I am currently receiving TTI-622 by Trillium Therapeutics,..."
Justin McClanahan, Moderator | @JustinMcClanahan | Jun 24, 2019

@kevin_153, here are a few additional resources should you be interested in researching a bit more about CAR-T trials at Mayo Clinic or a potential second opinion:

- Clinical trials at Mayo Clinic search, https://www.mayo.edu/research/clinical-trials
- If you are interested in inquiring about a potential second opinion at Mayo Clinic, http://mayocl.in/1mtmR63
- Mayo Clinic's CAR-T cell therapy homepage, https://www.mayoclinic.org/departments-centers/car-t-cell-therapy-program/home/orc-20404317

@kevin_153, you mentioned that you relapsed from your stem cell transplant within 10 months. Many members have inquired about the process of undergoing a stem cell transplant, even though you relapsed, are you comfortable sharing your overall experience with your autologous stem cell transplant?

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cindycoult | @cindycoult | Feb 6, 2022

Hi Kevin, my name is Cindy & on 2/2/22 I was just diagnosed with non Hodgkin Lymphoma, I had no idea a skin sore could be a blood disease. How long have you been Know of your lymphoma.?

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