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Pmr and no drugs

Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (36)

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Profile picture for boomermeg @boomermeg

Hello Teresag1. Sorry to hear you have PMR too.
If your pain isn't bad and is manageable so far you're lucky. I hope it stays that way for you. My pain has been severe for almost 5 months since it started in Mid March. I didn't know what it was, thought it was my rotator cuff injury on one side and that I'd torn the other side too. I'm still too new to PMR to know re other meds or options. If it's manageable right now, but has potential to worsen, I'd start researching online for all possible treatments you can take with glaucoma. I hope you can find something that'll help you when/if you need it. Everyone's experience seems to be different. Mine is pain that's so severe it wakes me up in bed and I have to get upright and go sit on couch to try to sleep anymore. The pain is still there sitting up, but it doesn't keep getting worse like it does when I'm lying down. I do have a lot of musculoskeletal problems from my spine and years of chronic pain, so that may have some impact on how the pain levels are for me, I don't know. It has been brutal pain that is incessant from the time it starts during the night/early am, and continues into the morning at least 4-5 hours from time I get up. I've hardly had sleep since Mid-March. Just got diagnosed 7/31 and started 15mg Prednisone which has helped some, but had to up it to 20mg a few days ago because it's still not complete relief. This support group has a lot of people with different experiences and I hope someone here has some ideas for you. I pray you never get the severe pain, stiffness or any other PMR symptoms that so disable us. I pray you find a medication that works with glaucoma. Blessings.

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Replies to "Hello Teresag1. Sorry to hear you have PMR too. If your pain isn't bad and is..."

@boomermeg where is your pain? I would absolutely go talk to your doctor about upping the dose even more. I started out with 60 mg, which knocked out the pain let me tell you. The PMR pain is mostly in between my shoulder blades. But when it reaches the buttocks, and I have trouble sleeping, eating or resting upright, then it’s a problem. I’ve been back and forth on what to take and what to do for fear of side effects. It seems to come on seasonally too. Right now being quite high in the discomfort zone. Mineral epsom salt baths really help. I hope you find relief! Tell your dr about your pain levels!