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I'm newly diagnosed . . .small bowel NET at the ileocecal valve

Neuroendocrine Tumors (NETs) | Last Active: Aug 11 6:59pm | Replies (43)
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@tomrennie

Do you know what a pancreatic polypeptide level means?

My serotonin, CgA and pancreastatin and insulin levels are all elevated but I would not say extremely high.

My pancreatic polypeptide level was 3412 pg/ml
normal range 56-480 pg/ml

I have a primary SBNET with metastatic mesentary lymph nodes that were confirmed on a Dotatate scan. Nothing was ever mentioned about pancreatic involvement. I just hope the lanreotide injections will help but surgery is being "encouraged." All of this is new to me but the SBNET was evident on CT scans more than 5 years ago according to the NET specialist.

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Replies to "@tomrennie Do you know what a pancreatic polypeptide level means? My serotonin, CgA and pancreastatin and..."
Turkey, Volunteer Mentor | @tomrennie | Aug 10 9:15am

@dadcue What do your doctors say about the elevated pancreatic polypeptide level?

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bonnerpb | @bonnerpb | Aug 10 9:44am

@dadcue
What is SBNET? Are you seeing a NET specialist at Mayo? Recently diagnosed with pancreatic NET and Ilum NET and my head is spinning.

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