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Stories of Success and treatments or activities that worked
Head & Neck Cancer | Last Active: 2 days ago | Replies (33)Comment receiving replies
As a patient one year out and still suffering with all the nasty side effects , demand they put in place a comprehensive plan for comfort of life modality to help you handle the said side effects.
The medical industry is short on helping patients live through the side effects .
Replies to "As a patient one year out and still suffering with all the nasty side effects ,..."
A request for a Palliative Care team is realistic with the extreme side effects of this treatment. I don't know how widely available palliative care is, but it is worth it to request.
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@ernierogersquamus123
Hi Ernie Thanks for your perspective. Not starting treatment till this coming Monday but relative to your comments there was nothing ever mentioned about a comprehensive plan for avoiding or mitigating side effects. The mention of side effects only came up in a kind of in a legal way they had me sign off a sheet of paper with various side effects circled that I might experience indicating that I acknowledge that this might be coming in my future. Kind of sad if you ask me. It does make me wonder if quality of life aspect to all this is ignored or minimized due to the fact that it's not covered by insurance plans such as Medicare. It's a question I'm going to ask at my first session to find out if those programs are sitting there but not available because of insurance limitations.