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PMR diagnosis after being treated for neuropathy
Neuropathy | Last Active: 20 hours ago | Replies (2)Comment receiving replies
@pah17 I have had idiopathic small fiber PN since my mid 40s but only sought after a diagnosis in 2016 when my PMR (2007 -2010) was in remission. I did take gabapentin for two weeks or so after pushing to see a neurologist and stopped taking after a couple of weeks it because it wasn't helping and my PCP who prescribed it discussed the drug with her cohorts and did say it does nothing for numbness and tingling and only helps for the nerve pain. When my PMR was active the pain felt like it was coming more from my shoulder and hip joints where the neuropathy numbness had nothing to do with the joints and was more about how the skin and muscle tissue felt close to the skin in my legs and feet. My PMR flared again in late 2016 and I went back on prednisone until it went into remission in mid 2018 or so. For me, the PMR pain was noticeably different than my neuropathy numbness without pain.
Have you discussed the pain with your doctor or rheumatologist or asked to see a neurologist to see if it may be neuropathy and not PMR?
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@johnbishop John, I'm followed by a Neurologist, as well as a Rheumatologist. In fact I first reached out to the Neuro when I the discomfort in my legs was getting worse to see if maybe I needed to try the higher dose of Gabapentin again. He needed to see me in the office. But the rest of the typical lower body symptoms came on steadily and rather fast, so I never did make an appointment. I was able to get into my doctor's office right away rather than go to Urgent Care. By the way the "cement legs" was only a small part of what was going on. I have described my symptoms here including the testing that helped confirm the diagnosis of PMR. I'm pretty sure that you've responded to me more than once and I've always found your input very helpful. At this point I'm more inclined to think that maybe I really don't have neuropathy. Neuro really doesn't have much to offer other than monitoring my progress.