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Severe Stenosis + synovial cyst
Neuropathy | Last Active: Aug 22 11:06am | Replies (17)Comment receiving replies
@rockon79
The back pain was not the issue - for over 10+ years dealing with chronic neuropathy with pain/ discomfort- I decided to change PCP last fall and decided to do a “reset” and start over. She is the one that said has anyone addressed the cyst ? Not one neurologist or pain management never suggested it could be the problem. Instead - you have idiopathic neuropathy- deal with it. So with help and guidance (although after all these years very educated on this problem) and wonderful sites such as this Mayo forum and Foundation for Peripheral Neuropathy, my PCP says new MRI and Xray of spine and feet - see a spine surgeon, a neurosurgeon and neuromuscular specialist. Of course I will take these three opinions and determine next move. I cannot rely on physicians to communicate or discuss- we just don’t do that these days.
Sadly. At 76 - basically healthy - I am about to throw my hands up. I am grateful for all the years I have had. Pain is coming too much. Keep posting.
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@patriciaschulz1950 I get the sense from your last post that you consider the idiopathic pain a separate issue, while it may not be. I don't like the term idiopathic, although sounding professional, it acknowledges the symptoms but admits not knowing the cause. Your former PCP did not serve you well for she ignored the lumbar cyst and severe lumbar stenosis, both pain causing and yet still labeled your pain "idiopathic", if I understand correctly. (a damaged spinal chord can cause pain in many seemingly unrelated areas) Also, any competent physician or surgeon should satisfactorily communicate with me on a matter of such importance, or I probably would dismiss them. BTW, you mentioned a spine surgeon and a neurosurgeon both usually do this operation but I'd opt for the neuro. I do know the devastation of pain and since I have been extremely healthy all my life, I am kind of a "baby" in dealing with these issues in my old age. That is the way it has affected me anyways.