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Pancreatic insufficiency ..No cause?

Pancreatic Disorders | Last Active: 5 days ago | Replies (57)

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I also have EPI. In the beginning, I was prescribed one Creon 36000-unit capsule with each meal and snack, or five capsules a day. This dose didn't help at all; therefore, my gastroenterologist increased my prescription. After four months, I was up to three Creon 36000-unit capsules with each meal and two for snacks, for a total of 13 per day. My prescription sayes maximum 13 day. I am doing much better but still have diarrhea sometimes. The other problem I have is that I can have almost a regular bowel movement and two or three minutes later I have a bowel movement that is diarrhea. And then again after two or three minutes, I have another diarrhea episode, and sometimes a third episode within minutes. Has anyone else had or have this problem? If so, have you been able to keep this from happening? Any suggestions would be appreciated.

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Replies to "I also have EPI. In the beginning, I was prescribed one Creon 36000-unit capsule with each..."

@fred41 Welcome to Mayo Clinic Connect! EPI seems to have everyone on a different plan. Different types of supplements, different dosages. I haven’t paid very much attention to taking my pills when I should and even forgetting them frequently. But, I had a real wake-up call last week with abdominal pain and diarrhea in the middle of the night. It was awful. Lucky for me, I have the kindest husband in the world. He helped me and even put the laundry in the wash for me. Now he reminds me to take my Creon everywhere we go! Unfortunately, it will take your body some time to catch on to what you are trying to do. Try to keep a record of # of BM’s and type each day, #of Creon with each meal, and if you have fatty meals. Then make an appointment with your doctor to discuss what’s happening with you and maybe you can come up with a new plan.