Dear @annedallas , first and foremost. I am happy to hear that you are doing well now. Your story is more common than you think regarding misdiagnosis. I sometimes attend the women support group sponsored by BCAN and have heard similar stories many, many times. Frightening how many women were told all kinds of crazy things sometimes for years before their cancer was properly diagnosed. Mine started with unusual frequency for me, I found myself waking up to go to the bathroom ONCE a night as I’m sure anyone will realize is not an unusual event for women in their 60s. When I had a blood clot in my urine two months later, I went to urgent care they suspected a UTI and put me on antibiotics when the culture came back negative and they told me to finish the antibiotics anyway and were very fuzzy about what was next. I was too scared and that made no sense to me so I made an appointment with the first urologist I could get into praying for kidney stones, even though I didn’t have any pain. It is frightening how many times I’ve heard similar stories to yours and the level of education beyond the urology oncology community. We of course, can all help spread the word. Bladder cancer might not be the most common form of this dreaded disease but its common enough, and we can help educate others that blood in your urine is never normal. Best regards and thank you for sharing.😊