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DiscussionNeuropathy treatments: How to avoid scams?
Neuropathy | Last Active: 39 minutes ago | Replies (875)Comment receiving replies
Replies to "@johnbishop Out of curiosity I think you said you were diagnosed with SFN? SFN is diagnosed..."
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@megidigo I had the numbness that started in my toes and progressed into my legs just below the knees for 40 years before seeking a diagnosis, mainly because every primary care doctor I had told me there is nothing they can do for the numbness. Then in 2016 my PCP gave me a trial of Gabapentin which I only took for a week and it did nothing. She discussed it with her other cohorts at my Mayo Family Clinic and they told her the Gabapentin only helps with pain so she setup an appointment for me with a Mayo Rochester neurologist. I had an EMG/NCS and a physical exam and was diagnosed with idiopathic small fiber peripheral neuropathy without the gold standard skin punch biopsy. The neurologist also asked me if he could take a photo of my "classic" hammertoes which many neuropathy patients have. He wanted it for an upcoming presentation he was putting together.