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Neuroendocrine Cancer journey update
Neuroendocrine Tumors (NETs) | Last Active: Aug 28 7:00pm | Replies (18)Comment receiving replies
@zacharycat
My wife has been battling SB Nets (primary) since 2014 + metastases with the monthly injections until progression was noted; 4 cycles PRRT in 2023; 2 additional cycles in 2026, current imaging shows "stability"
Question: [as NETs often will progress, we have been researching what could be the next treatment(s)] You mentioned "oral chemotherapy cycles" - can you elaborate?
Thanks Mark
Replies to "@zacharycat My wife has been battling SB Nets (primary) since 2014 + metastases with the monthly..."
@markmark007
Following up on the above:
Are there preferred treatments that are used for PNETs vs. SB NETs?
i.e. one more effective than the other?
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@markmark007 The CAPTEM regimen is an oral chemotherapy combination of capecitabine and temozolomide used primarily to treat neuroendocrine tumors (NETs). It typically follows a 28-day cycle, where capecitabine is taken twice daily for a set number of days, and temozolomide is added for a subsequent set of days. (AI definition)
I'm hoping for some repeat PRRT as well. Four treatments in 2024 with Lutathera.