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Prostate Cancer | Last Active: 5 days ago | Replies (5)
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Replies to "Hi @jeffmarc ours is a genito urinary oncologist, I just wonder if we caught him on..."
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@kerryfr
They are probably hoping that the treatments they’re giving him now will stop the pain and shrink the metastasis. The thing is you should have SBRT radiation on those metastasis as soon as possible. You don’t want them to get into the bone marrow.
Of course, if he has more than five metastasis, they do want to use chemo usually. I do know somebody that had 12 of them zapped with SBRT, That’s not common.
When somebody has multiple metastasis, they put them on at least doublet therapy if not triplet. That means ADT and an ARPI. You really don’t seem to Getting the treatment for the level of prostate cancer that he has. You should ask about getting Darolutamide Soon. It is an ARPI drug that has very few side effects for most people and really Works well to suppress the prostate cancer. I’ve had PC for 16 years, Had four reoccurrences and that drug along with Orgovyx For ADT has kept me undetectable for the last 33 months. And also would suppress any pain I had from metastasis Since it prevents them from growing and spreading.
You should ask about getting Orgovyx for ADT. It’s a pill you take once a day. It causes less plaque buildup in the arteries And when you stop taking it, the testosterone comes back quicker Than other ADT drugs.
The real question is where are the next treatments? You should be having radiation on those metastasis or chemo, depending on whether you have too many. Maybe Pluvicto. You need to ask those doctors and get this moving.
You need to be proactive about prostate cancer. You can’t just let the doctors make the decisions you have to go in there informed and ask them for what you want.