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@auntieoakley The diagnosis was ultimately stage 4 ER+ breast cancer that had metastasized to my bones. Lesions from my skull all the way down throughout my whole skeleton but most heavily in the spine and pelvic bones. I had a lump in my breast but I always had lumps that came and went throughout my life, I didn't think much of it. I was 38 at the time of my diagnosis, not even the age where mammograms are routine.

I have been receiving treatment for 3-1/2 years now, I get injections to shut down my ovaries and I am on an AI along with CDK4/6 inhibitor. For my bones, I get zometa infusions, they were monthly for the first 3 years but now it's every other month.

I am very sorry that you and your husband have had to deal with this kind of negligence as well. It's bad enough when you are suffering with illness and pain but having medical professionals making the situation worse by not taking it serious or flat out not believing the patient is just unnecessary. Especially when pain is involved, they treat everyone like some kind of junky looking for a fix. Nevermind that I had already been suffering with very high levels of constant pain at home for many months prior to ever seeking any sort of treatment and my only other hospital visit in my life was to have an appendectomy when I was a child.

@smith777 I didn't sue the hospital, though I am sure I would have had a sufficient case. Sometimes when I rethink about it, I wish I had. Especially knowing they are likely just going on doing the same thing to other people. I did write a very lengthy letter to the hospital about it, when they sent me a survey about the treatment I received. I never heard a word from them about it, not even a letter of apology. Doctors like those who treated me so poorly, should be shamed and reprimanded when it comes to light how they treat innocent, suffering people.

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Replies to "@auntieoakley The diagnosis was ultimately stage 4 ER+ breast cancer that had metastasized to my bones...."

@coco46 I did the same with the survey. I also lodged a formal complaint with the hospital. I don’t know if anyone cared, not one person ever responded.
I am so glad that we have had Mayo in our lives. We have never encountered this at Mayo.
I am glad that you are getting care for your breast cancer. I was also in my 30’s at diagnosis, but Mets came much later after a recurrence. The good news is we are living longer and have more time with better quality than ever before.
Are you now being treated somewhere you feel you can trust to have your best interests?

@coco46
That treatment of you at the ER is horrible! That doctor should have his license revoked. Even when you are not suing the hospital, you might want to write to the board of medical in your state to complain. Most of the time the board won’t revoke the license, but it might serve as a record to help future patients.
But most of all, I’m glad you finally got the treatments. I hope you tolerate them well and they are effective. Hugs.