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← Return to GFR of 39 and microhematuria over 3 mo
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GFR of 39 and microhematuria over 3 mo
Kidney & Bladder | Last Active: Oct 4, 2017 | Replies (7)Comment receiving replies
Hi, @nevadagirl Your first move should be to have a SERUM Protein Light Chain assay done, as designed by Bindings Site and Mayo in UK , and a 24-hr urine collection Protein assay..If it shows anything but complete absence of misfolded protein in the 24-hour, there is probably your problem. There should be no more than 0.5 mg/deciliter protein in your urine. Anything over 0.2 is enough to cause the burning feet, and over 0.5 is enough to threaten your heartbeat, and thus your life. Over 1.8 mg/mL protein in your serum can easily kill, and no one will every know what did it.
Replies to "Hi, @nevadagirl Your first move should be to have a SERUM Protein Light Chain assay done,..."
Hi, Colleen. First off, I am not a med pro, although I have spent more time in hospitals than many MDs I know. My body was going to pieces, and it was very similar to @nevadagirl. GFR in the 40s would bounce up to 60s and back in a couple days time. Blood Glucose all over the place, running from 50 to 400. All measurement tests of every organ were off minimally, usually around 10% or less, but always showing larger than normal size. This started during high school. Kidney, lungs, throat, liver, thyroid, heart, nerves, brain, eyes, spleen, pancreas, larynx, cancers everywhere, macular skin on arms, legs, etc., all going bad. So I started spending a lot of time trying to figure it out. I read in some daily newspaper a brief article about Amyloidosis. Then I started looking at symptom checking sites, and found this strange word again and again. Then an online doc said I had Amy. So I started looking. I found the classic Amy book from Mayo, Morey Gertz ed., "Amyloidosis--Diagnosis and Treatment" , started reading. Expensive, but worth it. Found the Amyloidosis Foundation, and the NIH library. And the doc did the sFLC and 24-hr proteinuria analyses, and both showed results well above the safe range. So I studied harder, and kept track of my lab tests and observations, such as purpura in the eyelids, macular skin, petechiae, daily BP, etc. Well, you have seen the rest of the story. There are many more signs. Hematuria, proteinuria, corneal dystrophy, nail splitting, carpal tunnel, shoulder tendon issues, RA, PA, cardiac QRS low voltage, etc.
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I was unfamiliar with Serum Free Light Chain assays, so I looked it up and found this information for others who may also be unfamiliar with this lab test. https://labtestsonline.org/understanding/analytes/free-light/tab/test/
Karl, you seem quite knowledgeable about these tests. Are you a medical professional or a well-studied patient? Which protein test was being analyzed in your case and for what condition?