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Looking for success stories from T3-Pelvis fusions

Spine Health | Last Active: 5 hours ago | Replies (28)

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@karenoharmon: Hi,Karen, I read your profile after seeing your comment about what I posted. I’m very interested in your post-surgery journey since I had a spinal fusion 3 months later than you. The fatigue you noted is relatable. Fixing a meal, taking a shower, doing laundry—all were exhausting and I had to take a short nap after these tasks. This exhaustion has improved. My energy level is much better. You’re absolutely right about major surgery impacting mind, body, and spirit. The medical profession needs to improve upon advising patients about the possibility of these post-surgery aspects of healing.
Do you still feel the hardware at this point post-surgery? I feel the hardware when walking—it’s like a weight in my lower back that kinda freaks me out. It’s probably where the spine is fused to the pelvic bone. Getting into bed is awkward and still tender during movement to get comfortable. I had numbness in my left leg after sitting for ½ hr or more. The only way to relieve it was to lie flat on my back. This worked for a while until I started experiencing pain in left leg. Pain continued until it became unbearable and I went to ER. I was put on Fentanyl, Toradol, and valium. Numbness and pain now gone, (so are the drugs) but driving for more than ½ hr. is uncomfortable and a strain on my sciatic nerve. I wear a brace when driving to help absorb impact from bumps on the road and to keep me from slumping because slumping bends the rods along my spine. I can no longer prop in bed with pillows and have to sit in chairs with straight backs. No need for walker or cane anymore, but the brace in worn when out for a daily walk. The brace helps relieve the uncomfortable feeling of heaviness in the lower back with every step that's taken on pavement.
Until stumbling upon this Mayo forum, I had a lingering sense of loneliness because there was no one to communicate with who understood the surgery, it’s life-altering impact, physical limitations, and post-surgery experience. I’m so grateful to know I’m not alone in this journey. No wonder the Mayo clinic is world-famous!

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Replies to "@karenoharmon: Hi,Karen, I read your profile after seeing your comment about what I posted. I’m very..."

@memuno1stborn I do still feel the hardware~. I met with my PT this week for a check in and it was great to see my strength returning! He said I will likely feel the hardware unless I plan to gain a lot of weight and can concentrate it in my back~. It's not painful, just - ugh! I wish I didn't feel it - but I'm so grateful for the gains it has given me!

The fatigue is something you have to learn to respect. I know weekly what my schedule is going to be, so I plan for the stamina my days will require. For example, if I am going to have to work until 6:00pm, the day before I have to make sure I'm in bed on time. I allow for a slower morning so that I can coast in to work at 10. That means my meals were prepped earlier in the week so it's a grab and go situation, heat in the microwave when I get home. I don't try to do anything else on those days except some easy stretching, or 30 minutes of functional exercise in the morning, and a 30 minute walk in the evening.

Are you seeing a physical therapist that understands long fusion? That was a game changer for me. He has helped me concentrate on strengthening my core. This helps with car rides and sitting for sure!

Be kind to yourself. Advocate for yourself. Pace yourself. 365 days. Take it easy.
Blessings!