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@maeve115 I agree about the people with NETs being courageous and wonderful people, as is so evident on here! I would NEVER think of the people here as whiners! I hope no one felt I was saying that - quite the opposite. And it's perfectly fine for people to discuss their symptoms or hard times. This forum is for support for those who need it. Please forgive me for how that sounded!

I'm referring to the period when I had no idea I had NETs, had never heard of NETs, and just had weird, unexplainable symptoms which I knew were deeply affecting me but had no way of explaining to others. I was afraid they would think I was a hypochondriac or something. So I really wasn't forthcoming to anyone, family or not about what I was going through. That's just how I did it and I'm not saying it was a good way to handle it. So glad to have the info to share with them now. Again, I apologize if anyone thought I was talking about people with NETs; I was talking about myself and not understanding what was wrong with me. Thank you and all for your support!

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Replies to "@maeve115 I agree about the people with NETs being courageous and wonderful people, as is so..."

@taly No apologies necessary. You were just sharing. I know exactly where you are coming from. How did yesterday go?

@taly
I absolutely liked what you said.. For with neighbors I have been concerned about not looking as if I had cancer and avoiding too much of neighborhood activities and expectations. So, rather than sorry your words deserve a thank you. And I also like your words "Hypochondriac or something". I had the same concern before and even after diagnosis. It is hard for people to understand that this is a like a chronic condition and even though we do not have chemo or recover or die from this we are sick and are indeed courageous. So thank you for your understanding.. Absolutely, I related and am grateful for you naming/explaining a common situation and reaction for us.