← Return to Deeply frustrated: Unresolved pain due to geniculate neuralgia

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@marcd2k
Apologies for the long reply but I have to say for me it was one isolated incident. I have had extremely good care. Because of my shoulder and neck pain my primary ordered X-rays and referred me to a pain management specialist she knew because of my history of cervical spine issues. After dealing with the insurance rules, restrictions and approvals for MRIs, the pain management specialist referred me to a neurosurgeon they knew. The neurosurgeon was able to evaluate the X-rays, MRIs and my symptoms and ordered one more MRI and blood work. He diagnosed an autoimmune disorder rather than a structural issue as the source of my symptoms and he referred me to a rheumatologist he knew. My rheumatologist in addition to diagnosing me with PMR, noticed blood work pointing to a blood disorder and he referred me to a hematologist oncologist friend where I was also diagnosed with SMM. My journey was longer than I expected, but each doctor provided a thorough evaluation and only passed me to someone else whose expertise was necessary to arrive at the correct diagnosis. Maybe I was lucky. Some doctors have professions and some have jobs. It's the same as any field of work these days.

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Replies to "@marcd2k Apologies for the long reply but I have to say for me it was one..."

@kjoed53 Thank you for replying. No problem about the length of your post, I do it as well, thinking I'll write a couple of sentences and end up with multiple paragraphs. It's good to hear you had a positive experience with multiple doctors doing what they should be doing. And I understand, like any other industry, there will be that 10% that are not. Unfortunately for me, I have not found multiple doctors that are still doing what they should be doing, with many giving up after their one test, one image, one exam. They say they do not know the answer to my problem, but they never call another doctor for advice or send me to them. It's "Don't let the door hit you on the way out".