← Return to I'm newly diagnosed . . .small bowel NET at the ileocecal valve

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@maeve115 Thank you. i really get the behavior not matching the reality which has been the case for years; not saying hardly anything and masking, masking. Not wanting to be seen as a whiner or a downer. Our talk will be tomorrow night. Yes, in it together. "A burden shared is a burden halved; a joy shared is a joy doubled."

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Replies to "@maeve115 Thank you. i really get the behavior not matching the reality which has been the..."

@talalmohammad I had not thought of it as masking or pretending when talking to them, because it does not seem intentional. With family I just get so enthused to see them that the adrenaline shoots up. Later the energy is depleted and a flush may happen. However I do recognize the masking with neighbors and acquaintances. It is a challenge for them to comprehend NETs and I look so good for my age that they cannot imagine a "cancer" that has gone on for years.. We can be seen as whiners or downers but the people I see with NETs are courageous life loving and life giving people who live with a complicated and sometimes symptom-filled disease. Thank You.. May we indeed feel our burden halved and our joy doubled as we fill in our adult sons and daughters. Will be thinking of you tonight.