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DiscussionI'm newly diagnosed . . .small bowel NET at the ileocecal valve
Neuroendocrine Tumors (NETs) | Last Active: 38 minutes ago | Replies (27)Comment receiving replies
Replies to "@maeve115 Thank you. i really get the behavior not matching the reality which has been the..."
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@talalmohammad I had not thought of it as masking or pretending when talking to them, because it does not seem intentional. With family I just get so enthused to see them that the adrenaline shoots up. Later the energy is depleted and a flush may happen. However I do recognize the masking with neighbors and acquaintances. It is a challenge for them to comprehend NETs and I look so good for my age that they cannot imagine a "cancer" that has gone on for years.. We can be seen as whiners or downers but the people I see with NETs are courageous life loving and life giving people who live with a complicated and sometimes symptom-filled disease. Thank You.. May we indeed feel our burden halved and our joy doubled as we fill in our adult sons and daughters. Will be thinking of you tonight.