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DiscussionAre others with GCA and PMR on Tyenne Monthly Infusions?
Polymyalgia Rheumatica (PMR) | Last Active: 6 days ago | Replies (72)Comment receiving replies
Replies to "@kayept Hello! I have been on Tyenne weekly injections since January 2026. Previously on Actemra. I..."
@ldietz my appeal came in timely, and what a relief to ditch tyenne in favor of Act.
@ldietz
My timetable is almost exactly like yours. Stopped prednisone in April 2026. Was previously on Actemra then because of insurance, had to go to Tyenne. Now it's unavailable and Actemra was denied. MD and pharmacy are working on an appeal and I have one dose left. Insurance was pushing for Rinvoq but it's not a biplogic. I pray all who need it can get it in time.
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@ldietz
Thank you for y our response. I am having my prescription transferred from Walgreens specialty pharmacy to my Part D Medicare's preferred specialty pharmacy. It is still mail order, but, they seem to think they will not have the issues that Walgreens is having getting the medication. Time will tell. I have heard from others in this forum that the Tyenne manufacturer is at fault for not supplying enough of the drug to meet the need. I contacted the manufacturer, Fresiinius Kabi at Kabicare (#833-522-4227). The rep said that "the drug is not in shortage and is being distributed strategically, not at our descretion". I asked several pointed questions re: which pharmacies can get it in stock and he said I'd have to ask the pharmacy. Which I already had done with no definitive answer. So, it was like speaking with a politician who had been directed to say only one scripted answer and had no authority to give any significant, helpful information to the consumer. We are all at the mercy of these drug manufacturers and the 'government' that directs them and protects them. Yes, same for me regarding coverage of Tyenne vs. Actemra.
God speed to you, and all of us, in your efforts to maintain efficacious drug therapy for your\our conditions.