@taly
Hi Taly. Happy to share my experience as my initial NET was also in my iliocecal valve. That was 11 years ago! ( and it was stage 4)- so please take some comfort that NETs in GI system are slow growing and manageable. I had surgery to remove that initial tumor- found I had multiple lesions throughout colon and lymph nodes ( all removed in 2015). Have had 3 subsequent surgeries - tumors are now in my liver- normal progression) - many different types of treatments - ( including the surgeries). Bottom line- have maintained a nearly normal life over past 11 years - Worked full time ( just retired!) - stayed very physically active - which I think matters! Changed diet a bit ( think bland”!) -as my biggest issue has been managing GI issues.
Stay positive! Quality of life can be great!
Will keep you in thoughts and prayers!

All the best!