← Return to Are others with GCA and PMR on Tyenne Monthly Infusions?

Discussion
Comment receiving replies
Profile picture for kayept @kayept

I have been on weekly Tyenne self injections since April 14th, 2026. I have tapered from 40mg pred down to 3mg as of August 1st. My GCA dx resulted in my going from 10mg pred with my PMR dx in Oct, '25 up to the 40 mg. I am 109 lbs and have experienced no life altering side effects from either medication and no flares since tapering - PTL! My worst side effects were sleeplessness T/O the night and thin, fragile skin. However; now Walgreens Specialty pharmacy says they don't have we anymore Tyenne in stock, don't know when they will get it in and have reached out to other pharmacies and they have none, either. They sent me their last 2 autopens I received yesterday. I do not know what my options are at this time. I plan to reach out to my M'care pt.D provider today and should hear fromy rheumy today. I think I'll contact the Tyenne manufacturer, also. Anyone else having issues getting the Tyenne?

Jump to this post


Replies to "I have been on weekly Tyenne self injections since April 14th, 2026. I have tapered from..."

@kayept
Hello! I have been on Tyenne weekly injections since January 2026. Previously on Actemra. I have been off prednisone since May 2026 and doing OK. My rheumatologist recommended I go back to Actemra until Tyenne is available. The problem is the insurance company (BlueCross/BlueShield) won’t approve. Dr. filed an appeal and we’re waiting on a response. I have one more weekly injection on hand. Dr. Says we will discuss options a few days before next one is due.