Connect
← Return to What tests should be part of a surveillance protocol for lung NETs?
Discussion
What tests should be part of a surveillance protocol for lung NETs?
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (38)Comment receiving replies
@jessie1990 oh wow, I hope not to lose another lobe. Was that a really long recovery? I did really well but it seemed like it took forever to get my energy level back up. I was diagnosed in Springfield, MO and we recently moved to KC, MO. I now see an oncologist with KU that has ties to Mayo. I consider myself really lucky (blessed!) that mine were found early and I got treatment quickly and other than surgery recovery, really haven't noticed there is anything wrong with me. Good luck getting in more speedily so you know what's going on.
Replies to "@jessie1990 oh wow, I hope not to lose another lobe. Was that a really long recovery?..."
@ineedawhale
In 9/22/25 I had a RML
Lobectomy and RLL basilar segmentectomy. I had two surveillance scans 1/2026
Chest CT without contrast.
I requested July Chest CT have IV contrast which showed a new finding .
I will have a Chest CT with
IV contrast in October 2026
Besides CT scans with contrast do you have any other surveillance tests.
Protocols seem to not be consistent.
Connect
@ineedawhale yes it sure was a long recovery sweetie I had open surgery so I had 29 staples down my back 😢yes my energy was zapped from me for a really long time I'm from Ireland 😊 I don't have oncologist I didn't need any other treatment but I am attending a lung specialist thank you hun the waiting is driving me insane 🥰