Connect
← Return to What tests should be part of a surveillance protocol for lung NETs?
Discussion
What tests should be part of a surveillance protocol for lung NETs?
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (38)Comment receiving replies
Hi @ineedawhale just came across your post my is Jessica 😊 I also was diagnosed with typical carcinoid back in July last year found accidental for another issue pneumonia I've got a ct done that's when it was found so in dec of 2025 I've had my surgery they removed 2 lobes of my right lung it's called a bilobectomy my nodes also were negative so my lung specialist said he wanted a scan every 6 months which was meant to be done in June but I'm still waiting unfortunately there is a delay in scans in the hospital I attend I've had 2 ct scans so far one when I had pneumonia was wit contrast and one before surgery was with contrast so u presume my check up ct will be 2 wishing you all the very best ❤️❤️
Replies to "Hi @ineedawhale just came across your post my is Jessica 😊 I also was diagnosed with..."
@jessie1990
Are your CT scans without contrast
Connect
@jessie1990 oh wow, I hope not to lose another lobe. Was that a really long recovery? I did really well but it seemed like it took forever to get my energy level back up. I was diagnosed in Springfield, MO and we recently moved to KC, MO. I now see an oncologist with KU that has ties to Mayo. I consider myself really lucky (blessed!) that mine were found early and I got treatment quickly and other than surgery recovery, really haven't noticed there is anything wrong with me. Good luck getting in more speedily so you know what's going on.