Hi!

Mine were caught super early. (CT scan for kidney stones found the lowest one.) I had my right middle lobe removed last July. It contained a 1 cm NET, self contained, but too close to my heart to do much else than remove. In Oct I had cyber knife radiation on the slightly larger one in my left upper lobe. I'm still at the "CT and labs" every 3 months stage, but I expect to transition to every 6 months at the next one. I do have one small "blob" on each of the other 3 lobes. They're too small to say they are NETs, but I guess suspicious enough to watch. If I have symptoms, I don't know what they are. My chromogranin is way below even the upper end of normal. Hope that helps!