← Return to I'm newly diagnosed . . .small bowel NET at the ileocecal valve

Discussion
Comment receiving replies
Profile picture for Turkey, Volunteer Mentor @tomrennie

@taly Good luck with the scan tomorrow. Please let us know how it goes, ok?

Jump to this post


Replies to "@taly Good luck with the scan tomorrow. Please let us know how it goes, ok?"

@tomrennie Thank you so much. I will. I figure I'll know the basic results of what, if any, spreading there is beyond the one site by Friday.

I've arranged to meet with my kids Friday evening after my 4YO grandson is in bed so we can talk about it. I'll be really happy if it's a Stage 3 or less. But the symptoms point to spread in the liver, so I'm trying to be prepared for that. It's a conversation I'm really dreading ... unless it's good news.

The gastro practice that found it didn't know much about NETs. They told me since it was Grade 1 it would not affect my lifespan at all, just simple removal and move on almost like it never happened. So that's what I first told my kids. Later, I kind of clued them in that I'd learned more info since then, but . . .

I, and they, can take heart in the fact that these small bowel tumors are slow growing, even if they metastasize, and that I probably have some years ahead of me. I think it will be helpful for me, and maybe them, to know what it is we're adjusting to. And a week later with the surg consult, what the scope of the surgery is. It's all a little nerve wracking at this point. And living alone makes it a bit more so. I'm so grateful for all of you here and keep you in my prayers!