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So much uncertainty: How do you manage it?

Prostate Cancer | Last Active: Aug 8 7:11am | Replies (21)

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Hi Kevin, it looks like I am following your steps — had surgery at 56, I'm 59 now. Exact same pathology as yours, same Gleason; I will just need to add some cribriform and ductal pattern present. My post-RP pathology is much like yours, 10% of the prostate affected and clear on all fronts, no EPE, margins clear, nodes clear, pT2N0. Like you, I felt surgery was it, but two years later my PSA went up to 0.05, until the sh** moment came when I crossed 0.10. I went through SRT and 6 months of ADT, and just today I found out my SRT must have failed, since my PSA is at 0.12. Seeing your chart really helped me and encouraged me to just keep being in control and not let this sucker get out of hand and beat me. I see you patiently waited until you were able to see where the foci was and treat it. I am planning on doing the same. I am being treated at Mayo in Jacksonville. How did you create that graph? It's awesome — I think every PC patient should have one. Thanks a lot for uploading it; it really helped me a lot.

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Replies to "Hi Kevin, it looks like I am following your steps — had surgery at 56, I'm..."

@camacho66
3 1/2 years after surgery, my PSA started rising, so I had salvage radiation. 2 1/2 years later, my PSA started rising, so I went on ADT. That kept my PSA low for about 2 1/2 years at Which point I became castrate resistant and went on Casodex Followed by abiraterone When my PSA kept rising. In have Had two more reoccurrences, had to have a metastasis Zapped on my spine. Four years ago I found out I was BRCA2, which is why it keeps coming back, makes it much more aggressive.

It has now been more than 16 years and I Have been undetectable for the last 33 months. I’m on Orgovyx and Darolutamide And together they work great.

Prostate cancer is a chronic disease for almost all of us, not a deadly disease. Don’t get too concerned you have lots of years left, And they keep coming out with new drugs.