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Low iron levels and PMR

Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (51)

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@rlstonejr
It sounds like such a nightmare for most people when they try to taper down the Prednisone. I just got diagnosed 6 days ago and started 15mg. Not enough to stop the brutal pain or all the symptoms so just went up to 20mg this am. I can't imagine the concern you and everyone must feel about tapering and flares. For myself, I will be full of trepidation for the pain to return. This has been the most brutal pain I've experienced, next to nerve pain. My pain is in my shoulders, upper back, back of neck, upper arms, fingers. Some stiffness in back of thighs too but not a lot of hip pain. The stiffness in legs trying to stand up was a surprise too. Anyway, getting a little better so I know there's hope for relief. Just realizing it's going to be a tightrope act to taper.
I've been reading all through this PMR section of comments re different aspects of PMR and see some people trying different types of meds to taper with, including Hydroxychloriquine, Methotrexate, and a few biologics. I haven't researched them all for side effects nor for use with PMR but I will. Hydroxychloriquine has been around for so many decades and is incredibly safe, in spite of the lies during the pandemic. I hope you can find something that works to help taper without having the flares. It's so difficult to explain this disease, it's symptoms and the severity of the pain to people who don't have it. But those of us who do have it know none of us wants the pain to flare, not to mention the rest of the symptoms. Blessings

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Replies to "@rlstonejr It sounds like such a nightmare for most people when they try to taper down..."

I tried Hydroxychloriquine for over a year - no help for me. Tried oral methotrexate - made me sick. Tried shots - made me sick. Now trying Leflunomide which got me from 6 mg to 5mg but I flared trying to get to 4.5. Now I’m back at 6.5 mg working my way back down.