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Dysautonomia is ruining my life, no help from doctors
Autoimmune Diseases | Last Active: 2 days ago | Replies (75)Comment receiving replies
Interesting. I grew up at Stanford and know the moral sense well there. When I discovered other places out in the real world with other ideas, I left and never looked back with any positive feeling about the place. However, I concluded that since the follow-up that happened more than a year after the exam would need to be free of law suits, according to Stanford way of thinking, my condition probably was not very serious. I think that lawsuit-based determination of urgency is probably valid at Stanford,
So if they don’t care to see you, that could be good news. Do other medical centers act this way? Can’t get an explanation equals cause to celebrate?
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@tatiana987 I agree - lack of urgency/response is probably good news. Though, many diseases, such as dysautonomia, has such a big impact on QALY that I think patients could do with better response and interest from doctors.
Our experience with centres is it is quite varied. Stanford was the first one where I noticed the initial triage is done by a nurse AND the decision seems quite controversial. There patient reps etc were really helpful, so I feel this is more a reflection of individual than whole.
Though, for us, the additional complication is travel. When the patient is in such a situation where long distance travel is out of the question, you are down to telehealth options. And to your point about law suits, this becomes a pretty big barrier.