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Giant Cell Arteritis questions

Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (34)

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@sandiw77 Oh boy. That’s a lot going on for you. I have every thing you have. I’m glad to hear the Actemra is working for you.

It is frustrating with inflammation markers go up and being on prednisone for a long time. And the thought of knowing you can go blind.

Two mini strokes and you didn’t know except for your vision? Have you been to the heart doctor? That’s scary too..

I never heard of PMR until the doctor told me that’s what I have and can lead to GCA and it did.

Take care of yourself! ❤️ Be 💪 strong…. As hard as it may be. More times than not.

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Replies to "@sandiw77 Oh boy. That’s a lot going on for you. I have every thing you have...."

@tweet, yes I am seeing a cardiologist and have had all the test!! I am very blessed not to have had any damage from the strokes or blindness. I feel like I have found out so many things I didn’t know or had never heard of since I first heard about PMR. So thankful that we can find others with similar issues or concerns in this group. ❤️ Blessings!