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Giant Cell Arteritis questions
Polymyalgia Rheumatica (PMR) | Last Active: 4 hours ago | Replies (31)Comment receiving replies
@tweet, yes—I take Prednisone for GCA/PMR. My hip/shoulder pain and CRP/Sed Rates were all pretty intense and every time they attempted to lower my Prednisone, my inflammatory markers went back up. It was extremely frustrating but my rheumatologist suggested that I could have GCA. The surgeon he referred me to to confirm it thought I had been on Prednisone too long to say for sure so he didn’t do the biopsy. We didn’t realize it at the time but I had actually had 2 mini strokes and changes in my vision so I am very thankful that my rheumatologist persisted and treated me with Actemra. Actemra has helped with the pain (though I have degenerative disc disease and deal with daily pain) but my headaches did get substantially better.
Please keep us posted on your test results and I will be praying you get all the. right treatment. Take care! ❤️
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@sandiw77 Oh boy. That’s a lot going on for you. I have every thing you have. I’m glad to hear the Actemra is working for you.
It is frustrating with inflammation markers go up and being on prednisone for a long time. And the thought of knowing you can go blind.
Two mini strokes and you didn’t know except for your vision? Have you been to the heart doctor? That’s scary too..
I never heard of PMR until the doctor told me that’s what I have and can lead to GCA and it did.
Take care of yourself! ❤️ Be 💪 strong…. As hard as it may be. More times than not.