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Giant Cell Arteritis questions

Polymyalgia Rheumatica (PMR) | Last Active: 3 hours ago | Replies (31)

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@sandiw77 Thank you! I did mention it to doctor. He referred me to a heart specialist. I am in the middle of getting all those test done from doctor. I have high cholesterol and my doctor told me it could be from inflammation and or family. I told the doctor I don’t know why I have high cholesterol because I mainly eat fruits and yogurt and cottage cheese. Lol Then a nice dinner. He said inflammation can cause it.

I know we have to starve ourselves lol on prednisone and probably would still gain which some is water retention.

Are you taking prednisone for GCA.? Anyway,it could be the Rinvoq or clogged arteries which is what they are checking on now. I’m 64 . I told my husband the adverse effects from the Covid vaccine is what is going to kill me.

Take care of yourself. Hope you are doing fine.

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Replies to "@sandiw77 Thank you! I did mention it to doctor. He referred me to a heart specialist...."

@tweet, yes—I take Prednisone for GCA/PMR. My hip/shoulder pain and CRP/Sed Rates were all pretty intense and every time they attempted to lower my Prednisone, my inflammatory markers went back up. It was extremely frustrating but my rheumatologist suggested that I could have GCA. The surgeon he referred me to to confirm it thought I had been on Prednisone too long to say for sure so he didn’t do the biopsy. We didn’t realize it at the time but I had actually had 2 mini strokes and changes in my vision so I am very thankful that my rheumatologist persisted and treated me with Actemra. Actemra has helped with the pain (though I have degenerative disc disease and deal with daily pain) but my headaches did get substantially better.

Please keep us posted on your test results and I will be praying you get all the. right treatment. Take care! ❤️