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DiscussionMac and bronchiectasis and cpap.
MAC & Bronchiectasis | Last Active: 4 days ago | Replies (11)Comment receiving replies
Replies to "I was on CPAP 20 years ago and had to stop due to nasal issues. Restarted..."
@melzim Hmmm, I think the aspergillosis (ABPA) didn't crop up overnight - maybe the moisturized air from the CPAP liquified the "crud" in your lungs so you can now cough it out?
How are your treating the infection? Are you doing airway clearance?
@melzim Hi, I appreciate this question! I have been followed at the NYU bronchiectasis & NTM center for 2+ years now for longstanding bronchiectasis, and MAC that showed up 2 years ago. It was my PCP who suggested testing for sleep apnea since my deep fatigue was not resolving. He was right. They are finding a lot more apnea than they had expected among women and those of us who are not carrying extra weight -- they just didn't suspect it in the past. The sleep specialist also told me that with chronic lung or heart issues they want to treat apnea aggressively since (of course) dips in oxygen put extra stress on our lungs, and sleep apnea IS more common among those with bronchiectasis than in the general population.
I have now been on cpap for 8 months. I felt better immediately but then had RSV that went to pneumonia this past spring. To get to the point: I felt that cpap helped me through the pneumonia: I could breath overnight and reduced the coughing that could interrupt much-needed rest.
I feel better now than I have in a long time and recent PFT was dramatically improved.
It makes a lot of sense that these conditions can be connected or overlap.
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@melzim
Are you employing airway clearance to help clear phlegm? Twice a day for most is mainstay of treatment.