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I'm newly diagnosed . . .

Neuroendocrine Tumors (NETs) | Last Active: 4 hours ago | Replies (8)

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Profile picture for lindabees @lindabees

My husband sees Dr Sonbal at Mayo Phoenix. He and the other doctors and staff on the net team are excellent. You will be in excellent hands. Feel free tonask any questions. I'd be happy to help.
There are net specific organizations that will provide you with a wealth of information in preparation for your first visit.
http://www.netrf.org
has a patient resources section including a Newly Diagnosed section that will guide you in what to expect and questions to ask at your first appointment. There are also tons of informational videos.
Some additional advice: It sounds like you're being super proactive and that is great. Learn all you can about this disease before your appointment so you can make the most of it. Educate yourself enough to know if what any doctor tells you makes semse. Do not be afraid to ask questions
Be prepared to be your own best advocate regardless of the skill and knowledge of any doctor you see.

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Replies to "My husband sees Dr Sonbal at Mayo Phoenix. He and the other doctors and staff on..."

@lindabees Thank you for that useful information!

I guess I'm being "saved" from too many hours research with my computer going out and needing to wait for a part. I'm using a library computer right now which allows limited minutes.

I'd rather know all the possible good, bad, & ugly before I get there so I can be more present for the appointment instead of sitting in shock the whole time. (Which, I suppose, could happen anyway ... but I feel preparing at least helps.) If I'm pleasantly surprised, all the better!